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Latest announcements and gatherings
Rare Across America Training Webinar and Social Media Training Webinar
Rare Disease Legislative Advocates (RDLA) organizes meetings for rare disease advocates with their Members of Congress and/or the Member’s staff. Meetings will take place virtually on March 3 and 4, 2021. The RDLA team also helps to prepare advocates for their meetings, provides legislative resource materials, and hosts pre-meeting training webinars.
The Rare Across America training webinar will take place on February 4, 2021 at 2:00 pm ET, register here.
Special Social Media training webinar will take place on February 22, 2021.
This event has ended.
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.